4th ANNUAL SCIENTIFIC
SYMPOSIUM ON SPG4

Wednesday, March 25-Friday, March 27
Boston, MA or Virtual
Hosted by The Lilly and Blair Foundation in collaboration with Boston Children’s Hospital

The 4th Annual Scientific Symposium on SPG4, held March 25–27, 2026 in Boston, marked our largest and most productive gathering to date.

Families, researchers, clinicians, and partners came together from across the United States and around the world, with participation spanning five continents and more than 20 leading academic and clinical institutions. Over three days, the focus was clear and outcome-driven. We aligned on therapeutic priorities, advanced the path toward gene therapy, strengthened biomarker and natural history efforts, and connected preclinical work to clinical readiness.

Summaries from all sessions, responses to audience questions, and event photos are available below. These materials reflect the progress made and the momentum carrying this work forward.

Scientific Symposium on SPG4 Summary | Thursday, March 26

Family Day Summaries | Wednesday, March 25 and Friday, March 27

Expert Responses to Audience Questions

View photos from the event »

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