Together We Can
Create a better future for children afflicted with de novo spastic paraplegia - a swift and severe neurodegenerative disease.
-
About Us
Learn more about our work, our team and our story.
-
SPG4 and Research
Find out more about spastic paraplegia and work being done to advance a treatment or cure.
-
Golf Event
Read more about our signature fundraising event and confirm your sponsorship or registration today.
-
Donate Now
Support the Foundation and make a difference today in the lives of children battling this swift and severe disease.
Time is not on our side, but we hope you will be.
Founded by the Gregg and Lorek families, The Lilly and Blair Foundation is dedicated to improving the lives of children with de novo spastic paraplegia through collaboration with top scientists and funding of promising research. There is currently no treatment or cure for this swift and severe neurodegenerative disease. Learn more and donate now.